Archive for February 17th, 2010
Rare Disease Day is February 28, 2010
February 17th, 2010 | 
Author: (RareDiseaseDay.us) “Alone we are Rare, Together we are Strong”
From the Rare Disease website: “Each year, World Rare Disease Day will be observed on the last day of February (Feb. 29 in leap years and Feb. 28 in other years). Our goal is to draw attention to rare diseases as an important public health issue that cannot be ignored.
In the U.S., a rare disease is one that affects fewer than 200,000 people. This definition comes from the Orphan Drug Act of 1983 and is slightly different from the definition used in Europe. There are nearly 7,000 rare diseases affecting nearly 30 million Americans. In other words, as many as one in ten Americans are suffering from a rare disease.”
Join me and my fellow Dystonians and celebrate rare disease day. Help anyone you know with a rare disease by increasing awareness. Please visit the Rare Disease Day Website.
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